Stuck...
Today they had to turn up the oxygen from 0.5 L to 1.0 L because Mary's O2 saturation levels just aren't staying up. Her doctor has a chest x-ray ordered for tomorrow morning to see if they can figure out why she can't keep them up. It's a bit frustrating to see her go backward and not forward, but that's just the way it goes I guess. They are starting her on a diuretic to help with the oxygen problem. Dr. Miller told me it has a direct effect on her pulmonary function as well as helping her "dry out" a little more. She will most likely come home on this medication and probably be on it for a couple of months. We'll also have to follow up with a pulmonologist after she comes home to make sure her respiratory function is alright.
Since MC is also working on feeding from a bottle, her nurse pulled out her (OG) feeding tube because it was going in her mouth and not her nose and was making it hard for her to get a good latch onto the bottle. I was there when they tried to put the (NG) feeding tube down her nose and into her stomach, but after 4 attempts by 2 different nurses, and some bloody mucous, they gave up. It was so hard to stand there and watch them try and get it down as she was screaming. I was just about crying myself. They decided to give her a break (thank heavens) and try again later tonight. I haven't called to check on her yet to see if they got it down, but will a little later.
So we haven't made much progress yet this week, but we're slowly getting there. On a more positive note though, she did pass her newborn hearing screen today! So we've got that going for us! I took the cutest picture of her with my phone today, but can't for the life of me figure out how to get it from my phone to this computer. So I'll just have to take the camera to the hospital tomorrow. Hopefully my sweet Mary Cate is doing a little better by then!
7 comments:
Oh, Stacie! I haven't been blogging lately, but am glad to finally get the chance to read the updates on your sweet little girl. You truly are an amazing mom! I don't know how you are handling all of this, but I am SO impressed by you. I wish there was something we could do! Hang in there! Our thoughts and prayers are still with you all! Good Luck... hope you guys get some better news soon!
Man, you bring me to tears just talking about the NG tube! I so remember having to do that and watch that happen to Logan! Oh the pain we feel for them especially as they scream! I can kind of relate to what you guys are going through! I hope you know how much I think of you and your sweet baby! You guys are in my prayer and continuous thoughts each day! You guys are some pretty special people! Give Mary Cate a hug from me!!!
I love her and I don't even know her.
Shanna
I am so sorry. I remember when my girls were in the nicu. It is not the same as MC but I kinda know what it is like with progress and then a backward step. It is very frusterating. I wish I were there to help.
I am so sorry! How is she doing with the bottle? Have they tried any special nipples? I hope you get answers soon. We'll just keep praying for you guys. You are an amazing mom!
Oh Stacie, Just picture me giving you a hug. How I wish I was there to help you through some of this! I love you so much! Our prayers are still with you guys constantly!
Hang in there! The Lord knows what you are going through.
I glad to hear that she passed her hearing test. That's awesome. I sure hope that they can figure out the best way to help your sweet angel. Thinking of you always.... and it's ok to cry. I guess that means your normal.
Hi, Stacey - Lisa and I are still thinking of you and checking your blog regularly for updates. We are not far if you need ANYTHING. We are here for you if you need us!
Hugs to all - Lettie
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