One day up, one day down...
Mary Cate had a great day yesterday. They started real feedings on her through her feeding tube and she lost even more weight. The doctor said she's doing great developmentally, acting appropriately, so that is reassuring. They turned her CPAP settings down last night and stopped her pain/sedation medication completely. And her blood work is slowly gettting better everyday. So we were feeling pretty good when we left last night when we left.
Today however she wasn't having the best of days. Since they turned off her Fentanyl (constant pain meds) she is going through withdrawal symptoms. She was very aggitated today, crying alot and worst of all her little body was shaking. Poor Dustin went up after work and tried to help calm her down for 2 hours. He said it was hard to watch her go through that. The doctor finally changed the PRN meds from Versed to morphine. By the time I got into see her today, she was fast asleep on morphine and looked peaceful as could be. The nurse said if she continues to have problems with withdrawals and is constantly needing morphine to calm down, they will put her on a tiny dose of Methadone to help her body adjust to life without sedation. Hopefully she will be able to fight it off alone.
We continue to pray for her well being and stand in awe everyday with the progress she makes. One of my sweet friends commented on my blog and told me to 'keep positive and enjoy the little victories'... and that's what we're trying to do.
6 comments:
We continue to pray as well. You can see what a fighter she is. She's going to one feisty little girl!
Stacie and Dust, We are so excited to hear of Mary Cate's progress. We are constantly thinking of her and of you guys as well. We pray for your family and we can't wait to meet her. We love you guys.
Hey Stacie it is Chelsea (cram) I just wanted you to know that your little darling family is in our prayers. And you are amazing.
Yeah for progress! Stacie, please let me know when I can come get the kids to give you a break. Is Zack starting school?
Hi, Stacie... I'll be back home tomorrow (and Lisa got settled and moved in over the weekend) so we'll be coming to visit. We've been following all the details (thanks for all the updates) and have been concerned and praying for you and your sweet family. You are so strong and have such faith. I read through the comments and can see you are surrounded by such supportive friends and family. I'll come check on ya and would love to help where I can (meals, kids, driving you back and forth... ANYTHING). I know how hard it is to be in crisis and be away from your family - so I'm yours. I'll call you when I get there. Stay strong.
Stacie,
it's Brandy (Ross from NFM) anyway, I am so sad I didn't check your blog weeks ago... I am so sorry to hear what trouble you've been through lately, your blog made me cry. Anyway I hope it keeps getting better... You're family will be in our thoughts and prayers and hey I'm in Cedar if you ever need anything please let me know, you and your dad were always so helpful and sweet it's the least I can do.
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